BPAN RACE COMMUNITY DIRECTORY

STAY INFORMED AND LEARN ABOUT RESEARCH OPPORTUNITIES

With our growing global community, now more than ever, we are dedicated to ensuring that all our BPAN families in the United States and internationally have access to patient-centered resources, print and digital materials, upcoming events, and updates on advances made in research, patient care and advocacy. We are only as strong as our connection to our BPAN community.

FOR FAMILIES

OUR EXPERIENCE, STRENGTH AND HOPE

If you are a parent of a child who has recently been diagnosed with BPAN, please know that YOU ARE NOT ALONE. We, have been exactly where you are today, filled with questions, overwhelmed by fear of the unknown, feeling the urgency to "do" something, anything. Each BPAN family has their own unique story. Receiving a formal BPAN diagnosis for many has been a medical odyssey, a diagnosis which for some has taken years, sometimes decades to receive. Today, through our shared experience and our shared stories, we hope that you know that you never have to do this alone.

FOR RESEARCHERS

WE NEED YOUR COLLABORATION TO ACCELERATE A CURE

Through our new BPAN Research and Collaborative Exchange, we have the potential to make a real and positive change in the community. With the support of both the clinical care and research community, we can provide meaningful change in the quality of life for BPAN patients and caregivers. Get in touch with us today and see how you can lend a helping hand with this program.

GET INVOLVED TODAY

PRIORITIZING AND TACKLING THE TOUGH ISSUES

At BPAN WARRIORS we’re raising funds and promoting initiatives to serve the people who need them most. We believe in taking action with urgency in order to raise public awareness about some of the most pressing issues facing our community today. We cannot do it alone and need your support.